The Hirschsprung’s Hour
Presenter
Hirschsprung’s disease affects 1 in 5000 babies in the UK, and affects the large bowel, where the ganglion cells do not form properly. The aim of these episodes is to showcase the incredible people, diagnosed with this condition, that have not let in stand in their way.
The Hirschsprung’s show aims to bring you some of the leading lights in Hirschsprung’s awareness – including models, actors and professional sportspeople, they will tell there amazing stories and highlight some of the outstanding achievements along the way.
Episodes
The Hirschsprung’s Hour
Jodie Mulrainey shares her son Ollie’s journey with long segment Hirschsprung’s Disease, the challenges of enterocolitis and stoma issues over 10 years, and how his ACE stoma improved his quality of life.
The Hirschsprung’s Hour
An episode full of twists and turns as Stephanie Luster shares her daughter’s journey with Total Colonic Hirschsprung’s Disease. We discuss faith through difficult moments and the power of a supportive community.
The Hirschsprung’s Hour
Zandra Thomas shares her son Zacari’s journey with Hirschsprung’s Disease, autism, epilepsy and an genetic mutation. After years of hospital care and procedures, a colostomy has transformed his quality of life.
The Hirschsprung’s Hour
Laura shares her daughter’s journey with Total Colonic Hirschsprung’s, from diagnosis and surgery to enterocolitis. She also speaks candidly about parental mental health and why caring for yourself is vital for your child.
The Hirschsprung’s Hour
Bekki shares her journey as the mother of a 2-year-old son diagnosed with Hirschsprung’s disease. We discuss preparing for surgery from both parent and child perspectives and how stomas affect hydration.
The Hirschsprung’s Hour
Actor and broadcaster Denise Welch joins me to discuss son Louis’ Hirschsprung’s journey for the first time - from severe post-natal depression and psychosis to becoming one of Britain’s most loved personalities.
