The Hirschsprung’s Hour
Presenter
Hirschsprung’s disease affects 1 in 5000 babies in the UK, and affects the large bowel, where the ganglion cells do not form properly. The aim of these episodes is to showcase the incredible people, diagnosed with this condition, that have not let in stand in their way.
The Hirschsprung’s show aims to bring you some of the leading lights in Hirschsprung’s awareness – including models, actors and professional sportspeople, they will tell there amazing stories and highlight some of the outstanding achievements along the way.
Episodes
The Hirschsprung’s Hour
A powerful, emotional episode as Shakeyra Sanders shares her journey with Hirschsprung’s from the beginning. Later, we explore what her good days and bad days look like living with the condition.
The Hirschsprung’s Hour
Jack was diagnosed with both Hirschsprung’s Disease (1 in 5,000) and Duodenal Atresia (1 in 6,000) - an extremely rare combination. Annalise shares his premature birth, delayed diagnosis and how he’s now thriving.
The Hirschsprung’s Hour
An extraordinary story as Hana wasn’t diagnosed with Hirschsprung’s until age 22 after years of frustration. We also discuss ostomy surgery and how her life has improved since the operation two years ago.
The Hirschsprung’s Hour
Charli shares the story of her 3-year-old son’s Hirschsprung’s diagnosis. After a difficult start and hospital mix-up, she trusted her instincts and advocated strongly to ensure Teddy received the right diagnosis and care.
The Hirschsprung’s Hour
Hannah Blewitt shares her 5-month-old son Oliver’s journey with Hirschsprung’s. With no family history, the diagnosis and a January enterocolitis episode were a shock. She speaks about surgery and what lies ahead.
The Hirschsprung’s Hour
James Brattoli, an LA actor and screenwriter, shares a raw account of living with Hirschsprung’s. After 20+ surgeries before age six and with a brother who also had it, he reflects on its lasting mental toll.
